39 days ago by Jobiska

Some days I can't concentrate to read. You've probably found the same problem? I think it's a very common experience for people with M.E. One day on Twitter, I couldn't work out, after looking at it several times, whether what I was seeing was my own Twitter name or somebody else's with very similar ...

39 days ago by kitty

Last January I made a some New Year’s Resolutions. Here’s how I got on… Look after myself and get better – Well I don’t know. I feel like I’ve looked after myself much better this year. I’ve put myself first but then sometimes I’ve had no choice. Likewise I’ve pushed myself through when I’ve had to ...

41 days ago by Susannah

¸.•°˜”*°•.¸☆★☆¸.•°*”˜˜”*°•.¸☆★☆¸.•°*”˜”*°•.¸ I just wanted to take a brief moment to send some new year thoughts the way of you all, my readers & friends. This has been a difficult and challenging year for me in so many ways, to say the least, but there has been an astonishing saving grace - my blos ...

41 days ago by Susannah

¸.•°˜”*°•.¸☆★☆¸.•°*”˜˜”*°•.¸☆★☆¸.•°*”˜”*°•.¸ I just wanted to take a brief moment to send some new year thoughts the way of you all, my readers & friends. This has been a difficult and challenging year for me in so many ways, to say the least, but there has been an astonishing saving grace - my blos ...

50 days ago by Jobiska

It seems a crazy and contradictory situation to be thankful for being told you are "unfit for work". Does that make someone a scrounger or a conscientious realist? I hope you can understand my gratitude that for now, while I am too ill to leave bed or house some days, this is the best outcome for me ...

51 days ago by Jobiska

M.E. Associations breaks the news embargoed until today This sounds like great news, if it is funding for biomedical research. I'm not really sure what to think, yet. Any ideas on the people behind the various projects? There doesn't seem to be an immediate drive to separate Myalgic Encephalomyeliti ...

52 days ago by Neuschwanstein

When it comes to controversy and heated debate, few illnesses come close to Chronic Fatigue Syndrome, also known as Myalgic Encephalomyelitis (ME). There have been arguments about whether it exists, the cause, the best treatments and even the name itself. These disagreements have reached the level o ...

52 days ago by Jobiska

BBC News: Is the new disabled work benefit working? I don't hold out much hope for this programme tonight. I don't get a good feeling from this BBC preamble by Helen Grady. An M.E. sufferer who is "one of the country's top wheelchair badminton players" and "a regular at live action role-play festiva ...

56 days ago by Susannah

I've shared videos by Daisy before, which are always really inspiring and moving. She really knows how to straight talk, and how to talk from the heart in a way that can really reach people and show them the reality of the lives we lead, normally hidden away from view. This one had quite a significa ...

56 days ago by Susannah

I've shared videos by Daisy before, which are always really inspiring and moving. She really knows how to straight talk, and how to talk from the heart in a way that can really reach people and show them the reality of the lives we lead, normally hidden away from view. This one had quite a significa ...